Caring for someone with tardive dyskinesia (TD)

Your loved one depends on you

As a caregiver of someone living with TD, you may be taking on the responsibility of identifying and managing their condition.

Caring for someone with TD can be challenging. Your loved one may not realize that the movements they are exhibiting are caused by TD. Without fully understanding the scope of their condition, they may even reject seeking help.

However, you may be one of the few people with the ability to positively influence how your loved one manages their TD. Use your role to make a difference.

Icon of a person experiencing involuntary movements, with a caregiver standing next to him with a hand on his shoulder

Be your loved one’s advocate

There are many things you can do to address your loved one’s TD.

  • Educate yourself on TD, such as what causes it

    TD is caused by taking certain kinds of drugs, such as antipsychotics, that help control dopamine, a chemical in the brain.

  • Know what TD looks like

    The uncontrollable movements of TD may appear in the lips, jaw, tongue, and eyes. TD can also affect the upper body, arms, hands, legs, and feet.

  • Monitor for signs and symptoms

    Your loved one may not know that their symptoms could be caused by TD, so you can learn how to help them recognize the condition.

  • Ask your loved one’s doctor to screen for TD

    If your loved one hasn’t been diagnosed by a healthcare professional, consider asking for an evaluation.

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Act now! Speak with your loved one’s healthcare provider as soon as you see the signs and symptoms of TD.

Get the support you need

Learn about useful resources, including organizations that support TD and mental health. Many advocacy groups have specific resources for caregivers.

Learn about how the community can help you and your loved one >

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